Delay the Disease

Delay the Disease is a fitness program designed by Jackie Russell and David Zid to empower people with Parkinson’s Disease (PWP) by optimizing their physical function. It is the foundation for exercise classes geared specifically to counteract the movement challenges experienced by PWP and is available as a book, DVD, and newly released sequel “Functional Fitness” DVD.

Participants boast about mobility improvement, regaining a greater degree of ‘normalcy’ and maintaining and improving independence. They enjoy the confidence of knowing that they are not defined by their disease anymore, they are now in control and can manage the disease proactively. Zid and Russell agree wholeheartedly with the newest researchers who have begun to see exercise as “the new drug for Parkinson’s.”

Robert Rodgers PhD
Founder 2004
Parkinsons Recovery

Metamorphsis: Shakin’ to Awaken

The following essay by Bianca Molle is a true inspiration for all of us.

“I would like everyone out there with Parkinson’s to know that recovery is possible. Mine came about by a dedicated Zhineng qigong (also known as Wisdom Healing or Chi-lel) practice of daily exercise and meditation. The plan is simple, but not easy. Motivation and a positive attitude are key catalysts. Bianca Molle

Below is the link to the Youtube video where Bianca Molle discusses her full recovery from Parkinsons Disease and offers a brief demonstration of Chi Gong.

http://www.youtube.com/watch?v=wAY6XmMxr48

Robert Rodgers, Ph.D.
Founder 2004
Parkinsons Recovery
Road to Recovery from Parkinsons Disease

Metamorphosis: Shakin to Awaken

By Bianca (Blanche) Molle

(Originally presented 9/24/10, at The Marin County, California Civic Center)

Just when the caterpillar thought the world was over, it became a butterfly -proverb

I found a refrigerator magnet with that lovely proverb while waiting in line at Whole Foods shortly after I had been diagnosed with Parkinsons Disease. That saying became my mantra. I needed it to be my mantra because something told me that I could find some good in my situation. What was my situation?

For a number of years I had felt pain and extreme fatigue. Of course, I was not getting any younger, and teaching middle school requires so much energy in the classroom, and grading and planning in the off hours that I thought this was just a sign that I was ready to retire. And my handwriting had become so small and cramped that my students could no longer decipher the very cogent, insightful comments I was writing on their papers. Also, I had demonstrated a tremor that had gone from almost negligible to formidable over the past few years. When it got in the way of one of my favorite activities, eating, particularly eating soup, I went to see my first neurologist.

So, in April, 2008, I was diagnosed with Parkinsons disease and began a program of treatment medications shortly after my retirement that June. I was taking Sinemet 25/100, the dopamine drug, three times a day, and Requip once daily. After a while, my symptoms began to worsen. I had the option of increasing my meds, something I did not want to do. What I was really looking for was relief from the chronic pain. I could continually feel the muscles in my spine and arms and shoulders contract. Also, navigating stairs became a cumbersome endeavor, feeling like I had sandbags strapped to my arms and legs as I tried to make my way up to the bedroom.

Although I found myself increasingly inactive, it is not like I took my situation lying down. In the first year after my diagnosis I was proactive about research and treatment. I saw two neurologists and a movement disorder specialist, visited the Parkinsons Center in Sunnyvale, California, applied to and was selected for the PD DNA study co-sponsored by Sergei Brin of Google and Michael J. Fox, a study called 23andMe. I had also joined the local PD support group, researched and read numerous books and internet sites, practiced yoga till I became too stiff for downward facing dog and so off-balance that my tree pose looked like a downward falling tree!! I had explored every avenue, visited everywhere, except inside myself.

Enter Qigong, with its holistic approach that integrates the body, mind, and spirit.

In June of 2009 I attended a Healer Within workshop presented by Mingtong Gu at The Marin JCC. Mingtong explained a little bit about energy clearing out the blockages that cause disease and then we began a Level 1 physical practice, Lift Chi Up Pour Chi Down. Although I was shaky and having some difficulty following directions, I immediately felt a layer of pain lift away. Something was happening. By the end of the weekend, Sunday night, I was convinced that qigong was working for me. Then, as we were leaving, Mingtong announced that anyone working on healing a chronic or serious illness should expect to practice a minimum of two to three hours daily. When I first heard this, my state shifted from blissful to annoyed. What, two to three hours a day?! I did not sign up for that! The truth is, I had not signed up for Parkinsons either. So I began reflecting, and within a few moments my attitude changed from negative to positive. It was a no-brainer. What was better: two to three hours of qigong practice daily, or ten to twelve hours on the sofa everyday, fatigued and in pain?

Probably one of the most difficult aspects of receiving my diagnosis was breaking the news to my family and friends. I could not bear to see sorrow or pity in their faces. So I told them that this was a gift. Here I was retiring, and now I had Carte Blanche to indulge myself. An example of this was visiting friends in Melbourne, Australia, during the winter of 2009. Then, at the June qigong workshop, Mingtong offered a Zhineng qigong retreat in China for the following fall. I went home, got on the computer, and booked the trip to Guelin, which happens to be one of the most beautiful places on Earth.

I began pinching myself. This Parkinsons journey was becoming a wonderful adventure. Qigong became my tour guide. I continued to practice at home, three hours a day, every day, doing the physical forms as well as the sound-healing and other Zhineng qigong meditational practices. Something unusual began to happen. Generally, I did not need the clock to tell me it was time for more PD meds, my body would tell me first. Then my body began forgetting. I took that as a sign that maybe I did not need so much medication anymore, so I gradually took myself off all PD medications, ( I did this while practicing qigong a minimum of three hours per day and am not offering medical advice here or anywhere in this narrative; I am simply relating my story) . So by 9/24/2009, the day I left for China, I had been off all PD meds for almost a month. I wanted to work on my situation at the China retreat without drugs possibly masking the symptoms.

By this time much of the pain and fatigue and some other symptoms had gone or greatly abated, but not the tremors. This made meals in China, using chopsticks, an entertaining and suspenseful event. Needless to say, I managed to eat very well, despite some aborted efforts between rice bowl and final destination.

I continued my practice when I returned home from the retreat, and still practice a minimum of three hours a day, or minimum two hours a day when I am working. (This retired teacher now substitutes and loves it, and is full of energy, not fatigue.) I saw the neurologist last week and was described as showing no signs of Parkinson’s at all. And it is not just me, some people with Parkinsons in the qigong community are demonstrating steady signs of improvement – like reduced tremors, better balance, increased flexibility in shoulders, faster, more fluid walking, and more energy.

If dedicated practice can show such benefits for a neurological condition, then what about for every human condition? Einstein said it best: Either everything is a miracle or nothing is a miracle. We can create miracles in our lives through dedication, practice, and positive intention. I came to qigong seeking a physical healing, and received that and so much more. Returning to the butterfly metaphor, I could say that qigong brought my body and spirit out of mothballs. And now that I am flying free, let me wish one and all a giant HAOLA. All is well.
_______________________________

***Because this was originally a timed oral presentation, I omitted some details like severe constipation, sometimes difficulty swallowing (choking sensation) especially when in a prone position, sometimes dragging of right foot, Parkinsons dry eye, and some lack of mental clarity, also my hands tended to hook in, with fingertips curling toward wrists, especially when at rest.

Climbing Mt. Kilimanjaro

New news from the Pedaling for Parkinson’s front. Former guests, John Carlin and Nan Little, who both have Parkinson’s and have ridden their bikes across Iowa for the last two summers, are readying themselves for another great adventure.

In a few weeks they will attempt to climb Mt. Kilimanjaro, the highest peak in Africa, with a group of Parkinson’s and MS patients. Their leader, Lori Schneider who lives with MS, has summit-ed the highest peak on each continent. John and Nan attribute their ability to get stronger, more fit, and even more adventuresome with PD to riding their bikes at a high cadence several times per week.

Robert Rodgers PhD
Founder 2004
Parkinsons Recovery

 

Music is a Powerful Therapy for Parkinson’s Symptoms

My guest Jodi Winnwalker, CEO of Earthtones Music Therapy Services in Portland, Oregon, has helped form a new music therapy group and choir in the Portland Metro area for people witt Parkinson’s Disease who talk too-softly (plus their care-partners and families). The choir is called The Tremble Clefs.

The goals of the project are to use researched- based-music-therapy techniques to improve vocal quality, strength, clarity, volume, projection, and breath support. In addition the program provides mental stimulation, promotes emotional well being & self esteem, provides opportunities for social connection & support in a wheelchair-accessible fun, success-oriented, musical environment at little to no cost.

As important, it provides an opportunity for the family members of people with PD to proactively participate while educating the public about what people with Parkinson’s Disease CAN DO. Learn More about the power of music to change the lives of patients and their families

Robert Rodgers PhD
Founder 2004
Parkinsons Recovery

Candida is a Factor for Holly Hughes

Recovering Parkinsonian Holly Hughes shares her whole body approach to naturally reversing the disease, including holistic treatment of systemic candida growth. Like many who are diagnosed with early onset PD, traditional doctors dismiss many known related issues that when addressed and alleviated provide relief of PD symptoms. Holly will also share her results from detoxing the body of heavy metals, utilizing vibroacoustic therapy and teaching a metaboliQ lifestyle.

Robert Rodgers PhD
Founder 2004
Parkinsons Recovery

 

 

Foot Whisperer Randy Eady on the Rhythms and Rhymes of Parkinsons

Our bodies and our lives are ordered by rhythms great and small, so rhythm feels great and does us good.

Parkinson’s Disease is one of the best examples to depict how rhythmic response can either throw off or balance the bodys physical activity needs and facilitate the integrity of machinery for maintaining a cell’s energy level. As many are aware (PD) is a form of accelerated aging. Shaking, tremors, the imbalance of neurotransmitters, and many other conditions of PD lead to declining efficiency and function in the body.

Randy Eady, located in Delray Beach, Florida, where he is known as the “Foot Whisperer” for his promotion of whole body health and balance through treatment of the feet, discusses a program designed to help both medicalized and “non-med” PDers deal with the condition’s symptoms.

Our bodies and our lives are ordered by rhythms great and small. Rhythm feels great and does us good. Parkinson’s Disease is one of the best examples to depict how rhythmic response can either throw off or balance the bodys physical activity needs and facilitate the integrity of machinery for maintaining a cell’s energy level.

Did you realize that walking on rocks can provide relief from your symptoms? Really. This is not a joke. Listen to the interview to learn why.

Robert Rodgers PhD
Founder 2004
Parkinsons Recovery

The Best Year of My Life: John Scappi on the benefits of 5htp

Diagnosed in September, 2009 at age 80 this is my interview with  John Schappi.

A Washington, DC resident, he pursues many interests, including gardening, bridge, travel, biking, and internet research. His blog Aging and Parkinsons and Me is designed to be a place for seniors dealing with Parkinsons and other afflictions to share their experience, strength and hope.

If you have always wanted to know more about the benefits that might accrue from taking the supplement 5htp, this show is a “must listen” for you. If you are having challenges with insomnia or constipation, John offers some amazing natural remedies that have worked beautifully for him.

Robert Rodgers PhD
Founder 2004
Parkinsons Recovery

 

Darlene Cohen: Turning Suffering Inside Out

Two years ago I launched a investigation on the use of meditation as a way of reducing stress and ameliorating the symptoms of Parkinson’s disease. I collaborated with psychotherapist Nancy Welch who recruited national authors, medical doctors and other experts to talk about how to reduce stress and trauma.

This show airs an interview with one of the persons on the interview panel. Darlene Cohen, author of Turning Suffering Inside Out. This week’s show celebrates Darlene’s incredible life. She died in January of 2011 of cancer.

Robert Rodgers PhD
Founder 2004
Parkinsons Recovery

Discoveries About Causes of Parkinsons from Voice Profiles

Sharry Edwards from Sound Health has been systematically analyzing the commonalities across voice profiles that have been taken of people with Parkinsons symptoms. Some of the profiles were taken from listeners of my radio show. Others were taken from people who attended Parkinsons Recovery Summits.

You are going to be truly amazed at what she has discovered. You will also be very surprised about the factors she has identified that are common to Parkinson’s Disease. Her research discoveries will inspire a different approach to the diagnosis and treatment of Parkinson’s symptoms.

Get ready to be excited and dazzled. This show will knock your socks off without even taking your shoes off. Sharry will be joined by Dr. Roman Chrucky, MD, who will discuss his own experience with voice profiling. I believe this is one of the standard medicines of the future.

The show lasts one and a half hours. Listening could potentially be a life changing experience for you and your family.

Robert Rodgers PhD
Founder 2004
Parkinsons Recovery

Howard Shifke: A Holistic, Drug Free Approach to Recovery

In my book of wisdom, everyone needs support to recover from the symptoms of Parkinson’s. Coaching can prove to be an invaluable resource for anyone on the road to recovery. Want to know how? Howard Shifke can help.

Howard Shifke is symptom free today after experiencing virtually all of the symptoms associated with Parkinson’s disease several years ago. Howard has a unique and fascinating perspective on what caused his symptoms and what he needed to do to address the causes.

Howard recovered using a holistic, drug-free approach that he developed. Howard’s recovery was a long, hard fight, but he has been symptom free since June 12, 2010, and on August 5, 2010, his neurologist stated that much to his surprise, Howard was in fact symptom free from Parkinson’s. Howard has chronicled his story on his blog, http://fightingparkinsonsdrugfree.com

Robert Rodgers PhD
Founder 2004
Parkinsons Recovery

.