Category: exercise

Ketones as a Parkinsons Therapy

Bill Curtis developed Parkinson’s symptoms at the age of 45 in the year 2000. He  discusses his experience with using ketones and other therapies.

Ketone Ester available at: https://www.ketoneaid.com/pr

Have questions? Email Frank at: frank@ketoneaid.com

Update from Chris Hageseth MD

Robert and I have recorded interviews three times in the past:

  1. September 2016: Five years no medications. Parkinson’s improving. How I had gone for 5 years without meds and was doing well using exercise and yoga
  2. January 2017: Wholistic (or holistic) how different PWPs approach their treatment.
  3. October 2018: Shifting the Parkinson’s disease mindset.
  • This is my fourth appearance on the show today, and I still hold to my beliefs.  
  1. EXERCISE. EXERCISE, EXERCISE. I cannot exercise as hard as I did before. Gradually I had to walk more and jog less. Could only 3 – 4 miles.
  2. More convinced than ever that MINDSET/ATTITUDE is the key, PARKINSON’S IS A CHALLENGE, NOT A CURSE.  When I was formally diagnosed, I was 70 years old. Life expectancy for me was 84.1. Well, now I’m 82.4. In a year and a half, I will have reached my life expectancy.
  3. YOGA remains critical.
  4. WAIT UNTIL you really must take Levodopa. Levodopa induced dyskinesia (LID) is a real deal and can be disabling. Google it on YouTube. 
  • Let’s look at my life since we last met, year by year.

2018 – I shot a video titled So High So Low for the “I HAD A DREAM PROJECT” where I hiked a three mile walk trail and climbed a thousand feet. 

Link: https://www.ihadadreamproject.com/i-had-a-dream-project-videos 

That year I also went to Uganda to demonstrate the practices I used to manage so long without meds. (Robert, this is quite a tale, plus I have pictures.)

  • 2019 – After directing the local Parkinson’s support group, I resigned so new blood could take over.

BUT: New symptoms emerged that I didn’t know about:

  1. Anomia: a language specific disturbance arising after brain damage whose main symptom is the inability of retrieving known words. But it’s not dementia!
  2. Pseudo Bulbar Affect Crying or laughing excessively upon feeling any deep feeling.
  3. Dysphagia: difficulty or discomfort in swallowing as a symptom of disease. It starts out with mucus as postnasal drip. Get to an OT!
  4. Oily, flakey skin
  5. Sleep disturbances. Fall into deep sleep in the middle of the day. And then don’t sleep well at night.
  6. Pain in bed at night. Interfered with sleep.
  • 2020 – It was a remarkable and horrific year. PANDEMIC!

No more yoga classes! No gym with weightlifting. Social interaction approached zero. 

  • 2021 – Then, a condition worse than Parkinson’s emerged: Major Depression.

March 2021 – Fell and shattered right knee – 16 days in hospital.

July 2021 – Fell and broke my right hip.

August – Severe depression, I became suicidal.

September – Chose to have a course of electro-convulsive therapy (ECT)

October- It worked, and my PD improved a lot.

The falls were due to the antidepressant I was taking may increase fall for people with Parkinsons.

LESSON: Make sure you MD goes through all meds in case a med might make falling more likely

My story with Depression

Family history is strong.

Parkinson’s did not cause my suicidal depression, genetics and environment did.  Antidepressant medication failed to work and led to my falls!

2022 – I returned to my new normal. And that’s where I am today. I just have more symptoms and feel weaker.

I followed up with PWPs who I have advised in the past.

It became clear to me: I want to coach people with PD. 

I HAVE A LOT TO OFFER!

Teach PWPs how to become a “Bad Ass with PD.” 

No more withdrawal and depression.

My PD website: www.makemostofpd.com  

Robert, I want to come back with a program I have just developed to make being a person with PD and their caregiver have a better relationship. 

New website www.the-kindness-dialogue.com 

Robert Rodgers PhD

Research on the Gut-Brain Connection with Parkinson’s

Martha Carlin brings us up to date on the latest Parkinson’s Microbiome findings and research and help connect the dots to our environment and increasingly processed and toxic food systems with idea on how to build a healthy microbiome to improve the symptoms of Parkinson’s.  She will discuss environmental toxins, diet/nutrition, stress management and exercise as ways to impact the course of your disease and how to build your own health timeline to understand what may be impacting the course of your illness and how to change the trajectory.

Probiotics website: https://biotiquest.com

Martha Carlin’s My Parkinson’s blog https://www.marthasquest.com

Ketones as Therapy for Parkinson’s

Bill Curtis developed Parkinson’s symptoms at the age of 45 in the year 2000. He  discusses his experience with using ketones and other therapies.

Ketone Ester available at: https://www.ketoneaid.com/pr

Have questions? Email Frank at: frank@ketonaid.com

 

Life Extension Therapies: Improving the Quality of Life & Health of PD Patients

Topics that Natural Pharmacist Ross Pelton discusses include:

Parkinson’s Regeneration Training

Karl Sterling is a neuro-rehabilitation specialist and NASM Master Trainer based in Syracuse, New York, and is the creator of the Parkinson’s Regeneration Training ® and NeuroMotor Training ® education programs.

While his extensive experience as a rehabilitation specialist includes working with a variety of populations, he primarily specializes in working with clients who have movement disorders such as Parkinson’s disease, MSA (Multiple System Atrophy), MS, Charcot-Marie-Tooth, Alzheimer’s, Epilepsy, Autism, and more.

Karl travels extensively around the world as public speaker, keynote speaker, and educator in the movement disorder, human movement, and personal growth arenas. He is the Chief Operating Officer of Agile Human Performance, Inc. and owner/CEO of NeuroMotor Training LLC, which currently offer courses worldwide.

In his second book, “Parkinson’s Empowerment Training” author Karl Sterling goes deep into exploring many areas that will help the person with PD to manage symptoms and improve quality of movement, cognition, memory, and life. Topics include:

  • the power of hope, empowerment, and belief
  • how to maximize neuroplasticity
  • sleep management
  • benefits of using Power Plate and whole body vibration
  • learn about the many roles of dopamine
  • improve memory and cognition
  • “Nutrition in Parkinson’s Disease” written by dietitian, Cynthia Lopez

www.karlsterling.com

Lessons Learned from Hiking the Appalachian Trail

Questions Mountain Sage Addressed:

* Is Recovery Primarily mental or does “getting out of your mind” help?

* How does “You do not think till you pull the trigger” apply to recovery?

* Why are people who experience Parkinson’s symptoms always so active?

* How do you react in public when tremors flare?

*  Is sleep important?

* How to you get into the deep sleep that promotes recovery?

* How has V2VG (Vet to Vet Group) helped you out?

* Does helping others help you when you yourself need help?

Unshackling the Chains of Fear Part II

Fred Phillips is an author and former martial arts instructor. He was diagnosed with Parkinson’s disease in 2008. He is my guest on Parkinsons Recovery Radio to discuss his journey with this challenging health condition, his philosophy and approach to recovery, and his recovery protocol. Fred was originally a guest on Parkinsons Recovery Radio several years ago.

Fred blogs about his experience and can be found at fredphillips.wordpress.com. He lives on Manitoulin Island in Ontario, Canada.

https://fredphillips.wordpress.com/

Here are the questions Fred answers.

1. For those who may not be familiar with your story could you provide an overview of your experience with Parkinson’s

2. What caused you to develop Parkinson’s?

3. What has happened since we last spoke?

4. Has your philosophy or approach changed

5. What has been your experience with medication?

6. What does your overall protocol and daily regimen look like?

7. What advice would you offer others experiencing Parkinson’s?

8. Have you published any new books since we last spoke?

Natural Therapies for Parkinsons: https://www.parkinsonsrecovery.org

John Coleman ND Talks About His Full Recovery from Parkinson’s

Who was the first person to succeed in reversing all symptoms of their Parkinson’s disease? We obviously cannot know for sure, but naturopath doctor John Coleman, ND, was one of the first – if not the first to reverse his own Parkinson’s symptoms during the mid 1990’s. What is the story behind John Coleman’s recovery? How in the world did he figure out how to heal his neurological symptoms when no one else had succeeded before him?  What therapies helped his recovery? Which ones did not? John answers these and other questions during this remarkable interview with him.

This interview with John Coleman ND was originally aired on Parkinsons Recovery Radio in 2010. You will be surprised at his revelations about what made the most difference to the success of his recovery in this interview. John is the author of Stop Parkin’ and Start Livin‘.

For more information about the Aquas visit https://www.aquas4life.com

For more information about Johns 12 step recovery program, visit: http://parkinsonsrecoveryprogram.com

Robert Rodgers PhD

Physical Therapy and Parkinson’s

Walter Mady discusses the importance of Physical Therapy for the Parkinson’s disease patient and the factors that have made the biggest difference in addressing his own Parkinson’s symptoms.

  • Walter Mady has been a Physical Therapist for 28 years in the private sector.  Physical Therapists are healthcare specialists utilizing their knowledge of anatomy and physiology, therapeutic exercise, and ADL modifications when treating the Parkinson’s disease patient.
  • He specializes in manual therapy, orthopedic physical therapy, and is a specialist in exercise recreationally and therapeutically
  • Walter was diagnosed in 2008 with Parkinson’s Disease..
  • He will discuss and stress the importance of nutrition and exercise.

Walter Mady [wmady@comcast.net]